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WHAT IS ACHIEVED AND WHAT IS BEING ACHIEVED?

    In recent years, scientists made an important breakthrough in the treatment of neuromuscular diseases. New pieces of information are being collected, problems are considered from different viewpoint, the ultimate goal - radical healing of genetic diseases, one of them being neuromuscular disease - is becoming more and more attainable. Although there is still no cure, there are a lot of things to be done in order to help the disabled, the most important of which is rehabilitation.    

 

OBJECTIVES

       The Association runs a campaign for overcoming this serious handicap that in most cases confine the disabled person to wheelchair and has serious consequences on general health. It also works on complete social integration of its members. The main objectives are:

·  to inform the members about their rights and obligations

·  campaign for eliminating architectural barriers

·  to solve social problems, problems with health and other obstacles of members  

·  schooling

·  employment

·  transport (the use of public transport)

·  overcoming of prejudices  

·  to stimulate scientific and medical researches  

Unfortunately, in recent years the Association is faced with economical problems.

     The Association has difficult tasks to deal with and apart from those who are already involved in the work related to this issue your own involvement might be of help no matter whether you are active member of the Association, a doctor, a professional in any field or a student willing to be helpful.  You can also provide financial help  since it is necessary for providing laboratory equipment, wheelchairs or active relaxation which is vital for the health of everyone suffering from neuromuscular diseases.  

          We invite you to join us. 

About us

A group of people suffering from incurable diseases such as progressive muscular dystrophy and other neuromuscular disorders and their parents founded the South Backa District Association of Dystrophy 29 years ago in order to protect the rights and interests of this category of citizens.

Today, there are 168 members in our Association, most of them being children and the young. The disease is congenital and people suffering from it are usually confined to a wheelchair. In addition, other serious consequence on the general health might appear.  

The association is trying to help each member to become socially integrated in every-day life. The campaign starts with the knowledge that a child suffers from this serious and incurable disease. It continuous at the school age, since there are schools that don’t want to enroll our members because of their invalidity. Problems related to employment, transport, overcoming of prejudices, stimulation of scientific and medical researches are also dealt with.    

The most important activities of our Association at the moment are:

• to get a new photocopier which would be used as means of providing material and social stability for our members

• ·  to get computer equipment for school of computers where our members would be taught to work on a computer

• ·  intention that summer camp “Head up“ becomes traditional activity  

• ·  to organize rehabilitation for older members in one of the sea spas  

• ·  to get a van for transport of our members who are using wheelchair to the doctor, to school, to the theatre etc.

• ·  to cooperate with similar associations in foreign countries

The Association, together with other associations of dystrophy in Novi Sad, is working on solving another serious problem - elimination of architectural barriers. This is necessary since for disabled person in wheelchair it is impossible to overcome barriers such as kerbs let alone the entrances in any public institution, post office, theatre, etc.    

Apart from these activities, the Association takes care of its members providing material help for them, packages of food, facilities for the disabled and any other help.   

The fact that our Association exists for so many years is enough to realize that we are able to organize our activities and to make them function even during the most difficult periods, in the coordination with governmental and nongovernmental organizations.  In many cases the Association was of life importance for many of our members. Due to provided care many of our members gained social recognition and they also received credit from one another. Address of the Association is the address of another home of our members where they can always come and talk about their problems. This kind of image is considered as a proof that our Association is an organization that through its own example showed that disabled people don’t only use common goods but are also able to be actively involved in social life according to their capabilities.  

THE SOUTH BACKA DISTRICT ASSOCIATION OF DISTROPHY

 

Address:
Ilije Ognjanovića3, 
21000 NoviSad
Phone No: 00/38/21/ 524-781
e-mail:udfvoj@eunet.yu

Bank account:  340 – 2172 – 10

 

THE SOUTH BACKA DISTRICT ASSOCIATION OF DYSTROPHY

Chairman: Atila Kovač
Secretary: Aleksandra Panović
Founded on: July, 15^th 1978.
Members: 168

The main goal of our Association is to bring together disabled people, their friends, doctors, social workers and others, in order to achieve objectives important for improving general state of the disabled. Almost three decades ago, the Association was founded by a group of people suffering from dystrophy and their parents in order to protect the rights and the interests of this category of citizens. Today, there are 168 members in our association, the most of them being children and the young.

 

PSYCHO-SOCIAL AND ARCHITECTURAL BARRIERS

  Lack of information, prejudices, intention to hide ones invalidity as well as other kinds of social unacceptance leads to psycho-social barriers.   

   Architectural barriers make it impossible for disabled people to be peer entities of our community, to be not only users of common goods but also ones who are actively involved in social life according to their capabilities.